The American Association for the Advancement of Science presents
Now That We Have Sequenced the
Human Genome, What Does it Mean?
A Series of Congressional Seminars on Concerns Related to Genetic Discrimination
The recent announcement from both the public and private sectors on the completion of the human genome sequence has raised hopes of a medical revolution that will lead to major advances in human health. To take full advantage of this momentous scientific achievement will require public confidence that the genetic knowledge gained about individuals and groups will be used appropriately to improve health and not to discriminate unfairly against people. This seminar series will examine the nature of concerns regarding genetic discrimination in different settings as a way of promoting the sharing of information and public dialogue on this important set of issues.

Congressional Sponsors: Reps. Louise M. Slaughter and Constance A. Morella

 
April 3, 2001

Sequencing the Human Genome:
Unraveling the Mysteries of Health & Disease
Dr. Francis S. Collins, Director, National Human Genome Research Institute, National Institutes of Health
June 13, 2001

Genetic Testing and the Genes-Environment Debate
Dr. Neil A. (Tony) Holtzman, The Johns Hopkins University
Dr. Kenneth F. Schaffner, George Washington University

Relevant Links:

Your Genes, Your Choices, a description of the Human Genome Project, the science behind it, and the ethical, legal, and social issues that are raised by it.

AAAS Statement on Genetic Discrimination in Health Insurance

June 7, 2001, press release from Rep. Louise Slaughter on H.R. 602 - "The Genetic Nondiscrimination in Health Insurance and Employment Act"

A Summary of "The Genetic Nondiscrimination in Health Insurance and Employment Act" (H.R. 602)

"The dark side of genetic testing", U.S. News and World Report, February 19, 2001



Directorate for Education and Human Resources Programs
Directorate for Science and Policy Programs
     Scientific Freedom, Responsibility and Law Program
     Dialogue on Science, Ethics, and Religion
     Center for Science, Technology, and Congress

Please direct questions or comments to congress_center@aaas.org.
Last updated: June 14, 2001