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AAAS Scientific Freedom, Responsibility and Law

Impact of Information Technology on Human Subjects Research

Ready access to data on the web has made the Internet an increasingly popular research medium for social and behavioral scientists and other researchers seeking to study the dynamics of human interactions and analyze the impact of the Internet on behavior. However, certain features of online research introduce concerns about the adequacy of traditional policies governing human subjects research. For example, the blurred distinction between public and private domains on the web raises questions regarding requirements for informed consent and the protection of subject privacy and confidentiality.

In 1999, a workshop convened by the AAAS Program on Scientific Freedom, Responsibility and Law examined the ethics surrounding Internet research involving human subjects. A recommendation of the workshop was to review systematically the existing literature to understand better the nature of the research currently being conducted. With funding from the National Science Foundation, AAAS is undertaking a follow-up project to review and catalogue this literature. This review will identify social and behavioral science literature-published or unpublished-using human subjects in order to explore the ethical issues raised, whether or not explicitly raised by the researcher(s), how the investigators dealt with those issues, and what the implications are for protecting human subjects in Internet research. A final product will report on the project's principal findings and identify gaps in the literature that might warrant further research.

The project aims to help researchers, their institutions, policy makers, and those who participate in online research by identifying the range of methods and applications used in such research with human subjects, the ethical issues raised by use of those methods and applications, and the measures taken by researchers to minimize ethical concerns. An advisory committee composed of active online researchers, ethicists, and persons well versed in policy for human research protection will assist project staff in conducting the review.

Advisory Committee Members

Amy Bruckman
College of Computing
Georgia Institute of Technology

Melinda Bier
Sanford McDonnell Character Education Center
University of Missouri - St. Louis

Gary Ellis
Congressional Research Service
Library of Congress

Charles Ess
Interdisciplinary Studies Center
Drury University

John Gardenier
U.S. National Center for Health Statistics

Laura Gurak
Rhetoric Department
University of Minnesota

Philip Howard
Department of Sociology
Northwestern University

Arthur Lupia
Department of Political Science
University of Michigan

Joan Sieber, ex officio
Societal Dimensions of Engineering, Science & Technology Program
National Science Foundation





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