A Short Course on
Racial and Ethnic Minorities as Research Subjects
Challenges for Research Ethics
APPLICATION
FORM
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AAAS
1200 New York Avenue, NW
Washington, DC 20005
shortcourse@aaas.org
Ethics and Experimental Design, Part II
Session # 3 March 16-18, 2001
| Friday, March 16 | |
| 7:30 - 8:30 | Breakfast |
| 8:30 - 10:30 | Report back on second assignment and its implementation at home institutions. |
| Facilitator: Mark S. Frankel | |
| 10:30 - 10:45 | Break |
| 10:45 - 12:15 | Topic: Justice - Thinking about benefits and burdens |
| Lecturer: Jeff Kahn | |
| 12:15-1:30 | Lunch |
| Speaker: Milton Hernandez | |
| 1:30-3:00 | Lecture and discussion: Race in research...when and how, or should we just forget about it? |
| Speaker: Troy Duster | |
| 3:00- 3:15 | Break |
| 3:15-5:30 | Topic: Research Ethics In International Research. Human rights and research ethics; different standards for countries that cannot afford treatment that would be required under the standard of care in wealthier countries-is it ethical or not, what does it mean to say that a country cannot afford a certain treatment for its people when the price of treatments is not fixed by God or physics but by people in wealthy countries with a particular set of interests and values? |
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Moderator: Cat Myser |
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| Panelists: Patricia Marshall, Sol Benatar, September Williams, Larry Gostin | |
| 5:30 - 6:30 | Break |
| 6:30 - 7:30 | Dinner and Break |
| Saturday, March 17 | |
| 7:30 - 8:30 | Breakfast |
| 8:30-10:30 | Report back on second assignment and its implementation at home institutions. |
| Facilitator: Marian Gray Secundy | |
| 10:30-10:45 | Break |
| Lecture and discussion: Patents and other property rights in biological mateirals | |
| Speaker: Pilar Ossorio | |
| 12:15 - 2:00 | Lunch |
| 2:00 - 4:00 | Lecture and discussion: Research Regulations-The Paradigm Shift from Protection to Justice as Access. |
| Speaker: Jeremy Sugarman | |
| 4:00 - 4:30 | Break |
| 4:30 - 6:00 | Topic chosen by the course participants |
| 6:00 - 7:30 | Dinner and Break |
| Sunday, March 18 | |
| 7:00 - 8:00 | Breakfast |
| 8:00 - 9:30 | Skills Workshop: Developing Curriculum Materials on Research Ethics |
| This session is aimed at helping participants implement educational programs at their home institutions. Materials development and strategies for training/education will be presented. | |
| Workshop Leader: Joe McInerney | |
| 9:30-11:30 | Skills workshop: Guidelines for Working across Race, Ethnicity, and Culture in Research Settings. |
| Workshop Leader: Kim Nickerson | |
| 11:30-12:45 | Lunch |
| Speaker: Stephen Jay Gould | |
| 12:45- 2:15 | Lecture and discussion: Within group diversity-dealing with the fallacy of monolithic identity (what are appropriate ways to use data about how people of a certain racial/ethnic group generally respond to a situation, or what people of a certain racial/ethnic group generally believe? Address the need to be attentive to the multiple social spheres and personal experiences that constitute any individual's identity.) |
| Speakers: Vivian Ota Wang, Vernelia Randall | |
| 2:15 - 2:30 | Homework assignment |
| 2:30 | Adjourn |